I haven’t played the Thursday Thirteen meme in a long time, because I’ve been very pre-occupied and self-absorbed lately. Health issues have plagued me (so to speak). I recently related that I have Hepatitis C antibodies in my blood.
Lots of folks have been asking me questions. I’m not an expert, and I haven’t seen a gastroenterologist yet. Most of the information I can give is from my family practitioner and a website by the C. Everett Koop Institute.
I hope you will slow down long enough to read this (I know you are in a hurry to comment on as many pages as possible). It’s important for you to have this information, because an early diagnosis of Hepatitis C increases your chances of survival. Though I don’t use Mr. Linky, leave a comment and your last blog post will show up in the comment box.
1. Why in the world would you write about this on the internet? Now everyone will know you have it? I want everyone to be aware of Hepatitis C. Studies suggest “over 200 million people around the world are infected with hepatitis C – an overall incidence of around 3.3% of the world’s population. Statistically, as many people are infected with HCV as are with HIV, the virus that causes AIDS.” Most of the people infected don’t know it.
2. Aren’t you embarrassed to tell people? No. There is indeed a stigma attached to the disease, but I want you to know that anyone can get it. Hepatitis C is very indiscriminating about who it will infect.
3. Any tattoos? This particularly insensitive question was asked of me by someone who should have known better. It indicates an ignorance of the disease that is prevalent in our world, and seems to subtly suggest that “it’s your own fault.” It’s like assuming that all people with diabetes are overweight, all lung cancer patients were smokers, all AIDS victims are homosexual. Yes, there is “risky behavior” which increases your chances of getting Hepatitis C. Getting tattoos is one (even if the needle isn’t infected, the ink can become contaminated). IV drug use and sexual activity with multiple partners are other risky behaviors. I didn’t engage in any of them (though I did seriously think about getting a lightning bolt tattooed on my butt…don’t ask).
4. How did you not know you had it? The symptoms of Hepatitis C are like the flu until it reaches advanced stages. It’s called a “Silent Epidemic” for that reason.
5. Are you contagious? Yes. But, you won’t get it from me by shaking my hand, hugging me, or even giving me a kiss. Hepatitis C is “blood borne.” You probably don’t want to share my toothbrush or razor. Because the Hepatitis C virus mutates rapidly, developing antibodies does not produce immunity. “In more than 85% of all cases, whether they progress to chronic liver disease or not, the infected individual carries the virus for life. This means that they also remain contagious for a lifetime, able to transmit the virus to others. And because of the long progression of the illness, even patients who will eventually die as a result of hepatitis C carry the virus for decades before it takes their lives.”
6. I have regular checkup and have blood work, so I probably don’t have it, do I? I certainly hope not. But, unless you specifically had a test for Hepatitis C, you don’t know that for sure. If you have given blood, it has been tested for Hepatitis C, but don’t use blood donation as a screening test!
7. Who should be tested? You have to decide for yourself if you should be tested (though after my experience I’d say that whether you think you have a risk factor or not you should check). Here are some…not all..risk factors (in no particular order):
- Blood transfusion before 1992
- Use of IV drugs or snorting of cocaine (even if it was a one time experiment)
- Multiple sexual partners
- Health care or emergency worker who comes into contact with blood.
- Served in the military, especially Viet Nam
- Were ever incarcerated
- H/C positive mother
- Alcoholism
- Had a vaccination with a pneumatic injector
- Tattoos and body piercings
- Kidney Dialysis
8. Can you protect yourself from getting Hepatitis C? Well, here’s a link to click for some tips.
9. Are you going to have to make lifestyle changes? Probably. I’m going to have to exercise more and eat a balanced diet. I’m going to probably have to give up drinking my occasional Guinness, as alcohol consumption can speed up liver damage. And, I’m going to probably have to be monitored (read that “stuck with needles”) regularly to make sure the disease hasn’t come back. So far, no one has told me I have to give up bacon, so I’ll be OK.
10. Will it come back? So far, nobody has been able to definitively answer that question. It’s very possible; “individuals cured of one strain will be prone to reinfection by any of the other strains.”
11. Is there a vaccination for Hepatitis C? Not yet, but there is treatment.
12. Are you scared? Duh. I’d be lying if I said I wasn’t. I was a lot more scared before I got the final tests results. The waiting was very stressful. I’m most afraid that I have inadvertently infected those I love (heck, I don’t even want to infect those I don’t love). If you are wondering if I’m scared I’m going to die….I figured I was probably going to do that anyway. My Daddy told me a long time ago, “Gal, you don’t get out of this alive.”
13. So, now are you going to start blogging about Hepatitis C all the dadgum time? Heck, no! I don’t want to be a “victim blogger.” I’m not a “victim,” and I don’t want sympathy. I’ve got a disease, but it doesn’t have me! I’ll be back to my silly self before you know it.
Thanks for visiting. Y’all go make it a good day.
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{ 15 comments… read them below or add one }
Thank you for sharing all this information. I learned a lot, and knowledge is power.
I hope the lifestyle changes you’ll have to make will be minimal and unintrusive.
((hug))
Robins last blog post..TT – Uncooked Stirfry
As long as the diet isn’t bacon free, all should be well. NOW – Which lightening bolt were you considering?
Thinking positive thoughts for you as always.
Jamies last blog post..A Gift Of Magic
Oh I’m glad that you shared all of that. That’s pretty gutsy. I don’t know if I’d be willing to. And I (strangely) enjoyed reading your answers to all of that. I really hope that everything works out!
(Sorry, I can’t do much more than say that in a comment. And unfortunately it sounds so trite.)
Derek Wongs last blog post..Neighborhood Dogs
Not playing this week, but wanted to comment. WAY TO GO Shelly. I’m very happy you posted this. What a great hunk of information on something that millions upon millions have. I’d give you a great big hug without a second thought. Have a great day. Big cyber hug.
Comedy Pluss last blog post..Heaven or Hell?
I was diagnosed in April with Non-Alcoholic Steatohepatitis (NASH) and am in stage 4 liver failure. Everyone needs the knowledge. It is so much more common to have a type of hepatitus than people think it is. My brother also has Nash, but in beginning stages. The doctor says 9 times out 10, it is herditary.
Great post! Happy TT!
Sandy Ms last blog post..Thursday 13 / the letter ‘I’
I’m not playing this week, but wanted to say, you go girl! Cicely Tyson said it best –
Hugs!!
YellowRoses last blog post..This, That & The Other
The ignorance of some people is so irritating, but I think you did a fabulous job of educating people here. And I for one am proud you are willing to share this journey with us.
If you want a chuckle, my silly T13 is posted @ The cafe.
Penelope Annes last blog post..Thursday Thirteen #34 – Word Verification Weirdness Volume 1
Excellent post Shelly. So proud to call you internet friend. You just educated a bunch of people about something very important!
Vixens last blog post..LOST Junkie Post
Shelley – Thanks for sharing the information. I believe, as do you, that the more people know about various health issues, the better off we all are! Ignorance is a much bigger problem than sharing information. I do the same thing by talking openly about my two little grandchildren who are both autistic because so many people are so fearful of this disorder, think it means these kids are doomed for life and well, just all kinds of misinformation.In my opinion, my grandkids and many others like them – as well as parents, other family members, friends and acquaintances need to know as much as possible about this disorder so that these children will then be better understood and hopefully, well accepted as they grow up then. And, the very same message applies to you and the Hepatis C virus! Keep doing what you’re doing to keep people informed with good and very valuable information. (Now, stay as healthy as you can and keep enjoying that bacon. I’d be lost too if they ever were to tell me I couldn’t partake of that delicacy!)
I don’t think I could cope half as well as you’re doing.
You’re truly amazing.
Freelance Gurus last blog post..Why is White the Colour of Death to the Chinese?
Thanks for sharing that. You will probably get many more ignorant comments, but most likely they are truly curious and just don’t realize how it sounds.
(I get stupid comments all the time for having 7 kids, they don’t realize how rude they are being.)
Qtpies7~s last blog post..
I’m so glad you posted this. I learned a lot… I’m thinking now about the accupuncture visits.
So glad that you, my dear, found out early.
susiejs last blog post..A sight for sore eyes, and tired dirty hands
Whew. You had me worried about the bacon.
Seriously? You’ve got the right attitude and I’m proud of you, woman. But neither of those things are new facts. You’re awesome. That’s not new, either.
Susan Helene Gottfrieds last blog post..Giving you… some excerpts
My cousin has it as well and the best we could figure out was that she got it a child, a blood transfusion in Germany back in the 50’s. Here in Canada many people were infected before they started testing blood, it was a national scandal. I have had many blood transfusions prior to testing but I got lucky and I don’t have it… Fortunately I believe it can be kept in check, or so my cousin says…ciao
rosittas last blog post..Bisphenol A – Back In The News
as above, so below . . . knowledge IS power, my friend. Thank you for sharing some of yours. And, I appreciate your stand on being (or not being) a “victim blogger”. Sometimes when we are faced with diagnoses or crises the only way we can deal is by blogging about them – that does NOT make us victims – I see it as helping us to think through, process, and carry on with our lives.
LIVE, Shelly!
love AND a HUG from Alaska